End of Life Issues
Eleanor Aronstein
December 13, 2020
Eleanor Aronstein has degrees in education and history, and has been active on the “death with dignity” issue. She called this a topic nobody wants to talk about. However, in fact, nobody gets out alive.
Aronstein attributed her activism to her mother’s 1972 death from ovarian cancer, with eleven months of suffering, regretting that at the time, there was nothing she could do to ameliorate the ordeal. Aronstein contrasted that experience with the peacefully eased death of her beloved dog, wondering why people cannot have likewise.
At the end of life, she queried, shouldn’t you want to determine what treatments you want or don’t want, and how much pain you must suffer, if it can be avoided? Noting that most people say they’d prefer to die at home, whereas most don’t get to do so.
Basically, the “death with dignity” paradigm allows people facing fairly imminent death to get access to the means to die at a time of their choosing, provided they’re still competent to make the choice. Aronstein noted that most people who do have access to the necessary pharmaceuticals actually don’t use them, finding that the sense of control by itself is an important source of comfort.
She put this in the context of a trend toward expanding human rights. With northwestern European countries already very progressive on this, some even allowing physicians to administer the coup de grâce. A sizable majority of the U.S. population favors something similar, but so far only ten states and the District of Columbia allow it, none of them permitting doctors to actually perform the deed. New York is not one of those states, legislation here being stalled since 1997. It’s opposed mainly by the Catholic Church and “Not Dead Yet,” a disability rights group, making “slippery slope” arguments.
Aronstein referenced a number of organizations promoting liberalization, including End of Life Choices NY, Death With Dignity, Compassion and Choices, and Final Exit Network, the one she’s active in. FEN, she said, advocates “a good life and a good death.” It does not encourage ending life, or provide the means, rather just offering information, support, and comfort.
Also discussed were the sorts of documents involved in control over the dying process: advance directives, living wills, health care proxies, powers of attorney, “Do Not Resuscitate” orders, etc. The main thrust is to set forth in advance your preferences for end-of-life care, and to empower someone trusted to intercede for you with medical personnel, if you yourself are not in position to do so. Absent such intervention, the medical system’s default is to do everything possible to keep someone alive.